|
🐜
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The Scleroderma Patient-centered Intervention Network (SPIN) Cohort: protocol for a cohort multiple randomised controlled trial (cmRCT) design to support trials of psychosocial and rehabilitation interventions in a rare disease context
38 auth.
L. Kwakkenbos,
Lisa Jewett,
M. Baron,
S. Bartlett,
D. Furst,
Karen Gottesman,
D. Khanna,
V. Malcarne,
M. Mayes,
L. Mouthon,
S. Poiraudeau,
M. Sauve,
W. Nielson,
J. Poole,
S. Assassi,
...
I. Boutron,
C. Ells,
C. V. D. van den Ende,
M. Hudson,
A. Impens,
A. Körner,
C. Leite,
Ângela Costa Maia,
C. Mendelson,
J. Pope,
R. Steele,
M. Suarez‐Almazor,
Sara Ahmed,
Stephanie Coronado-Montoya,
V. Delisle,
S. Gholizadeh,
Yeona Jang,
B. Levis,
Katherine Milette,
S. Mills,
Ilya Razykov,
R. Fox,
B. Thombs
|
6 |
2013 |
6
🐜
|
|
🐜
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CONSORT extension for the reporting of randomised controlled trials conducted using cohorts and routinely collected data (CONSORT-ROUTINE): checklist with explanation and elaboration
27 auth.
L. Kwakkenbos,
Mahrukh Imran,
S. McCall,
K. McCord,
Ole Fröbert,
L. Hemkens,
M. Zwarenstein,
C. Relton,
D. Rice,
S. Langan,
E. Benchimol,
L. Thabane,
M. Campbell,
M. Sampson,
D. Erlinge,
...
H. Verkooijen,
D. Moher,
I. Boutron,
P. Ravaud,
J. Nicholl,
R. Uher,
M. Sauve,
J. Fletcher,
D. Torgerson,
C. Gale,
E. Juszczak,
B. Thombs
|
6 |
2021 |
6
🐜
|
|
🐜
|
The Scleroderma Patient-Centered Intervention Network Cohort: baseline clinical features and comparison with other large scleroderma cohorts
40 auth.
D. Dougherty,
L. Kwakkenbos,
M. Carrier,
G. Salazar,
S. Assassi,
M. Baron,
S. Bartlett,
D. Furst,
Karen Gottesman,
F. V. D. van den Hoogen,
V. Malcarne,
L. Mouthon,
W. Nielson,
S. Poiraudeau,
M. Sauve,
...
G. Boire,
Alessandra Bruns,
L. Chung,
C. Denton,
J. Dunne,
P. Fortin,
T. Frech,
Anna Gill,
J. Gordon,
A. Herrick,
M. Hinchcliff,
M. Hudson,
S. Johnson,
N. Jones,
S. Kafaja,
M. Larché,
J. Manning,
J. Pope,
R. Spiera,
V. Steen,
E. Sutton,
C. Thorne,
P. Wilcox,
B. Thombs,
M. Mayes
|
5 |
2018 |
5
🐜
|
|
🐜
|
Performance of the Patient-Reported Outcomes Measurement Information System-29 in scleroderma: a Scleroderma Patient-centered Intervention Network Cohort Study
18 auth.
L. Kwakkenbos,
B. Thombs,
D. Khanna,
M. Carrier,
M. Baron,
D. Furst,
Karen Gottesman,
F. V. D. van den Hoogen,
V. Malcarne,
M. Mayes,
...
L. Mouthon,
W. Nielson,
S. Poiraudeau,
Robert J. Riggs,
M. Sauve,
F. Wigley,
M. Hudson,
S. Bartlett
|
5 |
2017 |
5
🐜
|
|
🐜
|
New directions for patient-centred care in scleroderma: the Scleroderma Patient-centred Intervention Network (SPIN).
35 auth.
B. Thombs,
Lisa Jewett,
S. Assassi,
M. Baron,
S. Bartlett,
Â. Maia,
Ghassan El-Baalbaki,
D. Furst,
Karen Gottesman,
J. Haythornthwaite,
M. Hudson,
A. Impens,
A. Korner,
C. Leite,
M. Mayes,
...
V. Malcarne,
S. Motivala,
L. Mouthon,
W. Nielson,
Diane Plante,
S. Poiraudeau,
J. Poole,
J. Pope,
M. Sauve,
R. Steele,
M. Suarez‐Almazor,
S. Taillefer,
C. V. D. van den Ende,
E. Arthurs,
M. Bassel,
V. Delisle,
Katherine Milette,
A. Leavens,
Ilya Razykov,
D. Khanna
|
5 |
2012 |
5
🐜
|
|
🐜
|
Validation of the Self‐Efficacy for Managing Chronic Disease Scale: A Scleroderma Patient‐Centered Intervention Network Cohort Study
17 auth.
K. Riehm,
L. Kwakkenbos,
M. Carrier,
S. Bartlett,
V. Malcarne,
L. Mouthon,
W. Nielson,
S. Poiraudeau,
K. Nielsen,
M. Baron,
...
T. Frech,
M. Hudson,
J. Pope,
M. Sauve,
M. Suarez‐Almazor,
F. Wigley,
B. Thombs
|
5 |
2016 |
5
🐜
|
|
🐜
|
Changes in mental health symptoms from pre-COVID-19 to COVID-19 among participants with systemic sclerosis from four countries: A Scleroderma Patient-centered Intervention Network (SPIN) Cohort study
101 auth.
B. Thombs,
L. Kwakkenbos,
Richard S. Henry,
M. Carrier,
S. Patten,
Sami Harb,
Angelica Bourgeault,
Lydia Tao,
S. Bartlett,
L. Mouthon,
J. Varga,
A. Benedetti,
Catherine Fortune,
Amy Gietzen,
Geneviève Guillot,
...
Nancy Lewis,
Michelle Richard,
M. Sauve,
Joep Welling,
K. Fligelstone,
Karen Gottesman,
C. Leite,
E. Pérez,
M. Baron,
V. Malcarne,
M. Mayes,
W. Nielson,
Robert J. Riggs,
S. Assassi,
C. Ells,
C. V. D. van den Ende,
T. Frech,
D. Harel,
M. Hinchcliff,
M. Hudson,
S. Johnson,
M. Larché,
C. Nguyen,
J. Pope,
F. Rannou,
T. S. R. Reyna,
A. Schouffoer,
M. Suarez‐Almazor,
C. Agard,
Alexandra Albert,
E. Bernstein,
S. Berthier,
Lyne Bissonnette,
Alessandra Bruns,
P. Carreira,
B. Chaigne,
L. Chung,
C. Correia,
C. Denton,
R. Domsic,
J. Dunne,
B. Dunogué,
D. Farge-Bancel,
P. Fortin,
J. Gordon,
B. Granel-Rey,
P. Hatron,
A. Herrick,
S. Hoa,
N. Jones,
Artur Jose de B. Fernandes,
S. Kafaja,
N. Khalidi,
D. Launay,
J. Manning,
I. Marie,
María Martín,
A. Mékinian,
S. Melchor,
M. Nikpour,
L. Olagne,
S. Proudman,
A. Régent,
S. Rivière,
D. Robinson,
E. Rodríguez,
S. Roux,
V. Sobanski,
V. Steen,
E. Sutton,
C. Thorne,
P. Wilcox,
M. Ayala,
Andrea Carboni-Jiménez,
Maria Gagarine,
Julia Nordlund,
Nora Østbø,
D. Rice,
K. Turner,
N. Culos-Reed,
Laura Dyas,
Ghassan El-Baalbaki,
Shannon Hebblethwaite,
Laura Bustamante,
Delaney Duchek,
Kelsey T. Ellis
|
5 |
2020 |
5
🐜
|
|
🐜
|
Protocol for the development of a CONSORT extension for RCTs using cohorts and routinely collected health data
23 auth.
L. Kwakkenbos,
E. Juszczak,
L. Hemkens,
M. Sampson,
Ole Fröbert,
C. Relton,
C. Gale,
M. Zwarenstein,
S. Langan,
D. Moher,
...
I. Boutron,
P. Ravaud,
M. Campbell,
K. M. Mc Cord,
T. V. van Staa,
L. Thabane,
R. Uher,
H. Verkooijen,
E. Benchimol,
D. Erlinge,
M. Sauve,
D. Torgerson,
B. Thombs
|
4 |
2018 |
4
🐜
|
