|
🐜
|
The Scleroderma Patient-centered Intervention Network (SPIN) Cohort: protocol for a cohort multiple randomised controlled trial (cmRCT) design to support trials of psychosocial and rehabilitation interventions in a rare disease context
38 auth.
L. Kwakkenbos,
Lisa Jewett,
M. Baron,
S. Bartlett,
D. Furst,
Karen Gottesman,
D. Khanna,
V. Malcarne,
M. Mayes,
L. Mouthon,
S. Poiraudeau,
M. Sauve,
W. Nielson,
J. Poole,
S. Assassi,
...
I. Boutron,
C. Ells,
C. V. D. van den Ende,
M. Hudson,
A. Impens,
A. Körner,
C. Leite,
Ângela Costa Maia,
C. Mendelson,
J. Pope,
R. Steele,
M. Suarez‐Almazor,
Sara Ahmed,
Stephanie Coronado-Montoya,
V. Delisle,
S. Gholizadeh,
Yeona Jang,
B. Levis,
Katherine Milette,
S. Mills,
Ilya Razykov,
R. Fox,
B. Thombs
|
6 |
2013 |
6
🐜
|
|
🐜
|
The Scleroderma Patient-Centered Intervention Network Cohort: baseline clinical features and comparison with other large scleroderma cohorts
40 auth.
D. Dougherty,
L. Kwakkenbos,
M. Carrier,
G. Salazar,
S. Assassi,
M. Baron,
S. Bartlett,
D. Furst,
Karen Gottesman,
F. V. D. van den Hoogen,
V. Malcarne,
L. Mouthon,
W. Nielson,
S. Poiraudeau,
M. Sauve,
...
G. Boire,
Alessandra Bruns,
L. Chung,
C. Denton,
J. Dunne,
P. Fortin,
T. Frech,
Anna Gill,
J. Gordon,
A. Herrick,
M. Hinchcliff,
M. Hudson,
S. Johnson,
N. Jones,
S. Kafaja,
M. Larché,
J. Manning,
J. Pope,
R. Spiera,
V. Steen,
E. Sutton,
C. Thorne,
P. Wilcox,
B. Thombs,
M. Mayes
|
5 |
2018 |
5
🐜
|
|
🐜
|
Performance of the Patient-Reported Outcomes Measurement Information System-29 in scleroderma: a Scleroderma Patient-centered Intervention Network Cohort Study
18 auth.
L. Kwakkenbos,
B. Thombs,
D. Khanna,
M. Carrier,
M. Baron,
D. Furst,
Karen Gottesman,
F. V. D. van den Hoogen,
V. Malcarne,
M. Mayes,
...
L. Mouthon,
W. Nielson,
S. Poiraudeau,
Robert J. Riggs,
M. Sauve,
F. Wigley,
M. Hudson,
S. Bartlett
|
5 |
2017 |
5
🐜
|
|
🐜
|
New directions for patient-centred care in scleroderma: the Scleroderma Patient-centred Intervention Network (SPIN).
35 auth.
B. Thombs,
Lisa Jewett,
S. Assassi,
M. Baron,
S. Bartlett,
Â. Maia,
Ghassan El-Baalbaki,
D. Furst,
Karen Gottesman,
J. Haythornthwaite,
M. Hudson,
A. Impens,
A. Korner,
C. Leite,
M. Mayes,
...
V. Malcarne,
S. Motivala,
L. Mouthon,
W. Nielson,
Diane Plante,
S. Poiraudeau,
J. Poole,
J. Pope,
M. Sauve,
R. Steele,
M. Suarez‐Almazor,
S. Taillefer,
C. V. D. van den Ende,
E. Arthurs,
M. Bassel,
V. Delisle,
Katherine Milette,
A. Leavens,
Ilya Razykov,
D. Khanna
|
5 |
2012 |
5
🐜
|
|
🐜
|
Changes in mental health symptoms from pre-COVID-19 to COVID-19 among participants with systemic sclerosis from four countries: A Scleroderma Patient-centered Intervention Network (SPIN) Cohort study
101 auth.
B. Thombs,
L. Kwakkenbos,
Richard S. Henry,
M. Carrier,
S. Patten,
Sami Harb,
Angelica Bourgeault,
Lydia Tao,
S. Bartlett,
L. Mouthon,
J. Varga,
A. Benedetti,
Catherine Fortune,
Amy Gietzen,
Geneviève Guillot,
...
Nancy Lewis,
Michelle Richard,
M. Sauve,
Joep Welling,
K. Fligelstone,
Karen Gottesman,
C. Leite,
E. Pérez,
M. Baron,
V. Malcarne,
M. Mayes,
W. Nielson,
Robert J. Riggs,
S. Assassi,
C. Ells,
C. V. D. van den Ende,
T. Frech,
D. Harel,
M. Hinchcliff,
M. Hudson,
S. Johnson,
M. Larché,
C. Nguyen,
J. Pope,
F. Rannou,
T. S. R. Reyna,
A. Schouffoer,
M. Suarez‐Almazor,
C. Agard,
Alexandra Albert,
E. Bernstein,
S. Berthier,
Lyne Bissonnette,
Alessandra Bruns,
P. Carreira,
B. Chaigne,
L. Chung,
C. Correia,
C. Denton,
R. Domsic,
J. Dunne,
B. Dunogué,
D. Farge-Bancel,
P. Fortin,
J. Gordon,
B. Granel-Rey,
P. Hatron,
A. Herrick,
S. Hoa,
N. Jones,
Artur Jose de B. Fernandes,
S. Kafaja,
N. Khalidi,
D. Launay,
J. Manning,
I. Marie,
María Martín,
A. Mékinian,
S. Melchor,
M. Nikpour,
L. Olagne,
S. Proudman,
A. Régent,
S. Rivière,
D. Robinson,
E. Rodríguez,
S. Roux,
V. Sobanski,
V. Steen,
E. Sutton,
C. Thorne,
P. Wilcox,
M. Ayala,
Andrea Carboni-Jiménez,
Maria Gagarine,
Julia Nordlund,
Nora Østbø,
D. Rice,
K. Turner,
N. Culos-Reed,
Laura Dyas,
Ghassan El-Baalbaki,
Shannon Hebblethwaite,
Laura Bustamante,
Delaney Duchek,
Kelsey T. Ellis
|
5 |
2020 |
5
🐜
|
|
🐜
|
Protocol for a partially nested randomised controlled trial to evaluate the effectiveness of the scleroderma patient-centered intervention network COVID-19 home-isolation activities together (SPIN-CHAT) program to reduce anxiety among at-risk scleroderma patients
139 auth.
Catherine Fortune,
Amy Gietzen,
Geneviève Guillot,
Nancy Lewis,
K. Nielsen,
Michelle Richard,
M. Sauve,
Joep Welling,
M. Baron,
D. Furst,
Karen Gottesman,
V. Malcarne,
M. Mayes,
L. Mouthon,
W. Nielson,
...
Robert J. Riggs,
F. Wigley,
S. Assassi,
I. Boutron,
C. Ells,
C. V. D. van den Ende,
K. Fligelstone,
T. Frech,
D. Godard,
D. Harel,
M. Hinchcliff,
M. Hudson,
S. Johnson,
M. Larché,
C. Leite,
C. Nguyen,
J. Pope,
A. Portales,
F. Rannou,
T. S. R. Reyna,
A. Schouffoer,
M. Suarez‐Almazor,
C. Agard,
Alexandra Albert,
M. André,
Guylaine Arsenault,
I. Benzidia,
E. Bernstein,
S. Berthier,
Lyne Bissonnette,
G. Boire,
Alessandra Bruns,
P. Carreira,
M. Casadevall,
B. Chaigne,
L. Chung,
P. Cohen,
C. Correia,
P. Dagenais,
C. Denton,
R. Domsic,
S. Dubois,
J. Dunne,
B. Dunogué,
R. Faré,
D. Farge-Bancel,
P. Fortin,
Anna Gill,
J. Gordon,
B. Granel-Rey,
G. Gyger,
E. Hachulla,
P. Hatron,
A. Herrick,
A. Hij,
S. Hoa,
A. Ikic,
N. Jones,
Artur Jose de B. Fernandes,
S. Kafaja,
N. Khalidi,
M. Lambert,
D. Launay,
P. Liang,
H. Maillard,
N. Maltez,
J. Manning,
I. Marie,
María Martín,
T. Martin,
A. Masetto,
F. Maurier,
A. Mékinian,
S. Melchor,
M. Nikpour,
L. Olagne,
V. Poindron,
S. Proudman,
A. Régent,
S. Rivière,
D. Robinson,
E. Rodríguez,
S. Roux,
P. Smets,
Douglas Smith,
V. Sobanski,
R. Spiera,
V. Steen,
W. Stevens,
E. Sutton,
B. Terrier,
C. Thorne,
J. Varga,
P. Wilcox,
M. Ayala,
N. Ostbo,
B. Thombs,
L. Kwakkenbos,
M. Carrier,
Angelica Bourgeault,
Lydia Tao,
Sami Harb,
Maria Gagarine,
D. Rice,
Laura Bustamante,
Kelsey T. Ellis,
Delaney Duchek,
Yin Wu,
P. Bhandari,
D. Neupane,
Andrea Carboni-Jiménez,
Richard S. Henry,
Ankur Krishnan,
Ying Sun,
B. Levis,
Chen He,
K. Turner,
A. Benedetti,
N. Culos-Reed,
Ghassan El-Baalbaki,
Shannon Hebblethwaite,
S. Bartlett,
Laura Dyas,
S. Patten
|
4 |
2020 |
4
🐜
|
|
🐜
|
Validation of the Social Appearance Anxiety Scale in Patients With Systemic Sclerosis: A Scleroderma Patient‐Centered Intervention Network Cohort Study
10 auth.
S. Mills,
L. Kwakkenbos,
M. Carrier,
S. Gholizadeh,
R. Fox,
Lisa Jewett,
...
Karen Gottesman,
S. Roesch,
B. Thombs,
V. Malcarne
|
4 |
2018 |
4
🐜
|
|
🐜
|
Performance of the Patient-Reported Outcomes Measurement Information System-29 in scleroderma: a Scleroderma Patient-centered Intervention Network Cohort Study.
18 auth.
L. Kwakkenbos,
B. Thombs,
D. Khanna,
M. Carrier,
M. Baron,
D. Furst,
Karen Gottesman,
F. V. D. van den Hoogen,
V. Malcarne,
M. Mayes,
...
L. Mouthon,
W. Nielson,
S. Poiraudeau,
Robert J. Riggs,
M. Sauve,
F. Wigley,
M. Hudson,
S. Bartlett
|
3 |
2019 |
3
🐜
|
