🐜
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Ethical and Practical Guidelines for Reporting Genetic Research Results to Study Participants: Updated Guidelines from a National Heart, Lung, and Blood Institute Working Group
30 auth.
R. Fabsitz,
A. McGuire,
R. Sharp,
Mona A. Puggal,
L. Beskow,
L. Biesecker,
E. Bookman,
W. Burke,
E. G. Burchard,
G. Church,
Ellen Wright Clayton,
J. Eckfeldt,
C. Fernandez,
Rebecca Fisher,
Stephanie M. Fullerton,
...
S. Gabriel,
F. Gachupin,
C. James,
G. Jarvik,
R. Kittles,
J. Leib,
C. O'Donnell,
P. O’Rourke,
L. Rodriguez,
S. Schully,
A. Shuldiner,
Rebecca K.F. Sze,
J. Thakuria,
S. Wolf,
G. Burke
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8 |
2010 |
8 🐜
|
🐜
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Global implementation of genomic medicine: We are not alone
44 auth.
T. Manolio,
M. Abramowicz,
F. Al-Mulla,
W. Anderson,
R. Balling,
A. Berger,
S. Bleyl,
A. Chakravarti,
W. Chantratita,
R. Chisholm,
Vajira H. W. Dissanayake,
Michael Dunn,
V. Dzau,
B. Han,
Tim J. P. Hubbard,
...
Anne Kolbé,
B. Korf,
M. Kubo,
P. Lasko,
Erkki Leego,
S. Mahasirimongkol,
Partha Majumdar,
G. Matthijs,
H. McLeod,
A. Metspalu,
P. Meulien,
S. Miyano,
Y. Naparstek,
P. O’Rourke,
G. Patrinos,
H. Rehm,
M. Relling,
G. Rennert,
L. Rodriguez,
D. Roden,
A. Shuldiner,
S. Sinha,
P. Tan,
Mats Ulfendahl,
R. Ward,
Marc S. Williams,
John E. L. Wong,
E. Green,
G. Ginsburg
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7 |
2015 |
7 🐜
|
🐜
|
Framework for development of physician competencies in genomic medicine: report of the Competencies Working Group of the Inter-Society Coordinating Committee for Physician Education in Genomics
12 auth.
B. Korf,
A. Berry,
Mel Limson,
A. Marian,
M. Murray,
P. O’Rourke,
...
E. Passamani,
M. Relling,
J. Tooker,
Gregory J. Tsongalis,
Gregory J. Tsongalis,
L. Rodriguez
|
7 |
2014 |
7 🐜
|
🐜
|
The OHRP and SUPPORT.
50 auth.
Benjamin S Wilfond,
Benjamin S Wilfond,
D. Magnus,
Armand H. Antommaria,
Armand H. Antommaria,
P. Appelbaum,
J. Aschner,
K. Barrington,
T. Beauchamp,
R. Boss,
W. Burke,
A. Caplan,
A. Capron,
M. Cho,
E. Clayton,
...
F. Cole,
B. Darlow,
D. Diekema,
D. Diekema,
R. Faden,
C. Feudtner,
J. Fins,
N. Fost,
J. Frader,
D. Hester,
A. Janvier,
S. Joffe,
J. Kahn,
N. Kass,
E. Kodish,
J. Lantos,
L. Mccullough,
Ross E McKinney,
W. Meadow,
P. O’Rourke,
K. Powderly,
D. Pursley,
L. Ross,
Sadath Sayeed,
Richard R Sharp,
J. Sugarman,
W. Tarnow-Mordi,
H. Taylor,
T. Tomlinson,
Robert D Truog,
Y. Unguru,
K. Weise,
D. Woodrum,
D. Woodrum,
S. Youngner
|
5 |
2013 |
5 🐜
|
🐬
|
Return of research results from genomic biobanks: cost matters
M. Bledsoe,
E. Clayton,
A. McGuire,
W. Grizzle,
P. O’Rourke,
N. Zeps
|
5 |
2012 |
5 🐬
|
🐜
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Navigating the research–clinical interface in genomic medicine: analysis from the CSER Consortium
16 auth.
S. Wolf,
L. Amendola,
J. Berg,
W. Chung,
E. Clayton,
R. Green,
Julie N. Harris-Wai,
G. Henderson,
G. Jarvik,
B. Koenig,
...
L. Lehmann,
A. McGuire,
P. O’Rourke,
C. Somkin,
B. Wilfond,
W. Burke
|
5 |
2017 |
5 🐜
|
🦁
|
Harmonization and streamlining of research oversight for pragmatic clinical trials
8 auth.
P. O’Rourke,
Judith Carrithers,
B. Patrick-Lake,
T. Rice,
Jeremy Corsmo,
Raffaella Hart,
...
M. Drezner,
J. Lantos
|
4 |
2015 |
4 🦁
|
🐜
|
Empirical validation of an automated approach to data use oversight
11 auth.
M. Cabili,
J. Lawson,
A. Saltzman,
Gregory A. Rushton,
P. O’Rourke,
J. Wilbanks,
...
L. Rodriguez,
T. Nyronen,
Mélanie Courtot,
Stacey Donnelly,
A. Philippakis
|
4 |
2021 |
4 🐜
|
🐬
|
Return of research results from genomic biobanks: a call for data
M. Bledsoe,
E. Clayton,
A. McGuire,
W. Grizzle,
P. O’Rourke,
N. Zeps
|
4 |
2013 |
4 🐬
|